Information on Lymphedema, Therapist Training, and Treatment Products

http://lymphedema.ons.wego.net/index.v3page;jsessionid=16hrphxqnepj2?v2_group=0&p=54169
The Oncology Nursing Society's Special Interest Group on Lymphedema Management publishes a newsletter three times a year. Full of informative news, and offering valuable moral support to therapists involved in treating this still under-recognized condition, the newsletter is a great resource.

http://www.mylymphedema.com/lymphedema_garments.htm
Juzo offers compression garments for the entire body. Visit the link above for information on all of Juzo's compression garments. The MyLymphedema.com site also provides useful general information on the management and treatment of lymphedema.

http://www.educareinc.com
Although the Educare site does not discuss lymphedema, it provides excellent, compassionate information about the symptoms and treatment of breast cancer, including a locator tool for finding a breast health specialist in your area. It also contains useful information for therapists and other professionals, including guidance on starting and growing breast health programs.

http://www.lymphedemazone.com/Lymphedema.html
The Lymphedema Zone is an excellent reference site, full of useful basic information on lymphedema causes and symptoms, as well as information about therapeutic methods, compression products, and therapist training.

http://www.jovipak.com
JoVi PAK lymphedema treatment. Ready-made and custom products.

http://www.klosetraining.com/
The goal of Klose Training & Consulting, LLC is to provide the highest quality Manual Lymph Drainage (MLD) and Complete Decongestive Therapy (CDT) training available in the U.S.

http://www.nortonschool.com/
The Norton School of Lymphatic Therapy is the premier educational institution for training medical doctors, physical therapists and their assistants, occupational therapists and their assistants, registered nurses, and nationally-certified massage therapists to become expert in the treatment of pathologies related to the lymphatic system.

http://www.lymphaticresearch.org
The mission of the Lymphatic Research Foundation is to find improved treatments and cures for lymphatic disease, lymphedema, and related disorders.

http://www.lymphaware.org
The mission of the Lymphedema Awareness Foundation is to be a LOUD voice in the promotion of lymphedema awareness and to establish referral networks and outreach programs for health care professionals and lymphedema patients.

Check out the Lymphedema Awareness Foundation’s online magazine, eLymphNotes, at http://www.elymphnotes.org. The "first e-zine on lymphedema", it contains information on new research, therapist training and employment opportunities, and activism around lymphedema.

http://www.lymphedemacircleofhope.org
The Circle of Hope Lymphedema Foundation, Inc, is an organization dedicated to promoting education, awareness, research, assistance, and support for lymphedema patients and their doctors.

http://www.lymphnet.org
Bellisse is a supplying sponsor to the National Lymphedema Network (NLN) which is an internationally recognized non-profit organization founded in 1988 by Saskia R.J. Thiadens, R.N. Its mission is to provide education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema.

http://www.lymphnotes.com
Lymph Notes is the information resource and online support group to serve those who are affected by lymphedema, the health care professional who treat them, and the suppliers who provide for their specialized needs.

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Patient Information & Support

http://www.cancersupportivecare.com/lymphedema.html
Once a person has been given a diagnosis of cancer, supportive care becomes the fifth therapeutic dimension, and a vital complement to surgery, radiation therapy, chemotherapy, and immunotherapy. We hope by reading and using www.cancersupportivecare.com, you will be able to better cope with the myriad of challenges that accompany the diagnosis and treatment of cancer.

http://www.dol.gov/ebsa/publications/whcra.html
Your Rights After a Mastectomy ... Women's Health and Cancer Rights Act of 1998

A very useful page on the website of the US Department of Labor Employee Benefits Security Administration. You'll find valuable information on the laws relating to health care coverage for mastectomies and reconstructive surgery a real boon to anyone struggling to navigate the complexities of our health care system.

Click here for an explanation of how the Women’s Health and Cancer Rights Act applies to coverage for breast lymphedema patients.

http://www.ipmr.org/pdf/summer_tips_for_lymphedema.htm
The Institute of Physical Medicine and Rehabilitation (IPMR), located in Peoria, IL, offers a wide range of physical therapy services and, though its foundation, provides free treatment for those who cannot afford it. IPMR’s excellent web page on lymphedema management during the summer is a “must read” for anyone suffering from, or at risk of, lymphedema.

(In addition, you can click here to read Bellisse co-founder Lesli Bell’s Summertime Lymphedema Tips [file size: 106kb; pdf file, pdf reader required].)

http://listserv.acor.org/archives/lymphedema.html
The Lymphedema Online Support Group.

http://www.lifeabc.org/
Life After Early Breast Cancer provides information on what happens in the years after initial treatment for breast cancer. The site is designed to be used by patients, caregivers, health care professionals, and advocates. Particularly useful are checklists for women to use when talking with their health care providers.

http://www.womenshealthresearch.org
The Society for Women’s Health Research raises awareness of the need for more research into conditions that affect women disproportionately, predominately, or differently than men. (Currently, it’s the only non-profit in the US that does this.) Through research, education, and corporate and legislative advocacy, the Society works for increased funding for women’s health issues and for the inclusion of women in major medical research studies.

http://www.Y-Me.org
The Mission of the Y-Me National Breast Cancer Organization is to decrease the impact of breast cancer; create and increase breast cancer awareness; and to ensure through information, empowerment, and peer support that no one faces breast cancer alone.

Last Update: June 7, 2006