Web Links
This page contains a list of some informative web site links about lymphedema. Please note that we do not endorse any of the content on these sites; the list is provided for your reference only. Please see our Privacy Policy for further information.
If you know of a website that may be helpful for the lymphedema community, please send an email to and let us know.
Patient Information & Support
http://www.oncologypt.org/presrc.cfm
The Oncology Section of the American Physical Therapy Association website offers several very useful links. In addition to a “Lymphedema Fact Sheet”, there is also a new “Peripheral Neuropathy Fact Sheet".
http://www.caringbridge.org/index.htm
CaringBridge.org is a non-profit organization that supports families facing serious illness by allowing them to create free web pages to help family and friends stay in touch.
http://www.bcaction.org
The motto of Breast Cancer Action is “Do something
besides worry…educate, agitate, organize”. BCA is an activist
political group whose aim is to “compel the changes needed to end the
breast cancer epidemic”. The group is known particularly for its “Think
Before You Pink” critique of the commercialization of Breast Cancer Awareness
Month.
http://www.mylymphedema.com/lymphedema_garments.htm
Juzo offers compression garments for
the entire body. Visit the link above for information on all
of Juzo's compression garments. The MyLymphedema.com site
also provides useful general information on the management
and treatment of lymphedema.
http://www.cancersupportivecare.com/lymphedema.html
Once a person has been given a diagnosis of cancer, supportive
care becomes the fifth therapeutic dimension, and a vital
complement to surgery, radiation therapy, chemotherapy, and
immunotherapy. We hope by reading and using www.cancersupportivecare.com,
you will be able to better cope with the myriad of challenges
that accompany the diagnosis and treatment of cancer.
http://www.educareinc.com
Although the Educare site does not discuss lymphedema, it
provides excellent, compassionate information about the symptoms
and treatment of breast cancer, including a locator tool for
finding a breast health specialist in your area. It also contains
useful information for therapists and other professionals,
including guidance on starting and growing breast health programs.
http://listserv.acor.org/archives/lymphedema.html
The Lymphedema Online Support Group.
http://www.shopwellwithyou.org
Shop Well with You is a not-for-profit organization
that uses clothing to help cancer patients and survivors improve
their body image and quality of life. The Shop Well with You
site contains a number of useful resources, such as listings
for shops and boutiques that carry specialty items, and a
one-on-one personal shopper service. One of the most useful
features of the site is the information it offers about how
to be both comfortable and fashionable while coping with various
medical conditions, including lymphedema. A great site for
women seeking to renew their sense of style and self after
illness.
http://www.bcrfcure.org
Established in 1993 by Evelyn Lauder, the mission of The Breast
Cancer Research Foundation is to achieve prevention and a cure
for breast cancer in our lifetime by providing funding for innovative
clinical and genetic research, and by increasing public awareness
about good breast health.
http://www.lifeabc.org/
Life After Early Breast Cancer provides information on
what happens in the years after initial treatment for breast cancer. The
site is designed to be used by patients, caregivers, health care professionals,
and advocates. Particularly useful are checklists for women to use when
talking with their health care providers.
http://www.womenshealthresearch.org
The Society for Women’s Health Research
raises awareness of the need for more research into conditions
that affect women disproportionately, predominately, or differently
than men. (Currently, it’s the only non-profit in the
US that does this.) Through research, education, and corporate
and legislative advocacy, the Society works for increased
funding for women’s health issues and for the inclusion
of women in major medical research studies.
http://www.Y-Me.org
The Mission of the Y-Me National Breast Cancer Organization
is to decrease the impact of breast cancer; create and increase
breast cancer awareness; and to ensure through information,
empowerment, and peer support that no one faces breast cancer
alone.
http://www.dol.gov/ebsa/publications/whcra.html
Your Rights After a Mastectomy…Women’s
Health and Cancer Rights Act of 1998
A very useful page on the website of the US Department of
Labor Employee Benefits Security Administration. You’ll
find valuable information on the laws relating to health care
coverage for mastectomies and reconstructive surgery –
a real boon to anyone struggling to navigate the complexities
of our health care system.
Click here for an explanation of how the Women’s Health and Cancer Rights Act applies to coverage for breast lymphedema patients.
Information on Lymphedema and Treatment Products
Preventing and Treating Arm Lymphedema
http://www.lymphedemazone.com/Lymphedema.html
The Lymphedema Zone is an excellent reference site, full of useful basic information on lymphedema's causes and symptoms, as well as information about therapeutic methods, compression products, and therapist training.
http://www.jovipak.com
JoVi PAK lymphedema treatment. Ready-made and custom products.
http://www.klosetraining.com/
The goal of Klose Training & Consulting, LLC is to provide
the highest quality Manual Lymph Drainage (MLD) and Complete Decongestive Therapy (CDT) training available in the U.S.
http://www.nortonschool.com/
The Norton School of Lymphatic Therapy is the premier educational institution for training medical doctors, physical therapists and their assistants, occupational therapists and their assistants, registered nurses, and nationally-certified massage therapists to become expert in the treatment of pathologies related to the lymphatic system.
http://www.lymphaticresearch.org
The mission of the Lymphatic Research Foundation is to find improved
treatments and cures for lymphatic disease, lymphedema, and related
disorders.
http://www.lymphaware.org
The mission of the Lymphedema Awareness Foundation
is to be a LOUD voice in the promotion of lymphedema awareness
and to establish referral networks and outreach programs for
health care professionals and lymphedema patients.
Check out the Lymphedema Awareness Foundation’s online magazine, eLymphNotes, at http://www.elymphnotes.org. The "first e-zine on lymphedema", eLymphNotes is primarily geared toward therapists, but may also have some articles of interest to patients.
http://www.lymphedemacircleofhope.org
The Circle of Hope Lymphedema Foundation, Inc, is an organization
dedicated to promoting education, awareness, research, assistance,
and support for lymphedema patients and their doctors.
http://www.lymphnet.org
Bellisse is a supplying sponsor to the National Lymphedema Network
(NLN) which is an internationally recognized non-profit organization
founded in 1988 by Saskia R.J. Thiadens, R.N. Its mission is to
provide education and guidance to lymphedema patients, health care
professionals and the general public by disseminating information
on the prevention and management of primary and secondary lymphedema.
http://www.lymphnotes.com
Lymph Notes is the information resource and online support group to serve
those who are affected by lymphedema, the health care professional who treat
them, and the suppliers who provide for their specialized needs.
http://www.acols.com/
Academy of Lymphatic Studies
11632 High Street, Suite A
Sebastian, FL 32958
772-589-3355
The primary objective of the the Academy of Lymphatic Studies is to provide the highest quality education in Manual Lymph Drainage and Complete Decongestive Therapy (MLD/CDT) and to advance the availability, quality, use and support of lymphedema management techniques through standard settings, terminology, education and research.
http://www.clt-lana.org
LANA
The Lymphology Association of North America (LANA) is a non-profit corporation composed of health care professionals, including physicians, nurses, massage therapists, physical therapists, and occupational therapists experienced in the field of Lymphology and lymphedema. They have acknowledged the need for a national certification examination for lymphedema therapists, to test knowledge considered fundamental in the treatment of lymphedema.
http://www.vodderschool.com
Dr Vodder School-North America
To provide the highest quality educatio in the Dr. Vodder method of Manual Lymph Draiage and Combined Decongestive Therapy and to ensure the continuing competence of practitioners trained by the Dr. Vodder School
If you know of a link or article that you think should be in this section, or you would like to contribute a story or case study, please email us at .
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